When I'm Better Foundation will research cure for rare brain cancer in honor of Maryland boy who lost his battle – NBC4 Washington

Last May, we at News4 introduced you to Finn Cusick, a courageous boy from Charles County who battled a rare form of brain cancer. The 10-year-old with a big heart inspired the Finn's Fierce Fight movement and rallied a community in his support.

Finn died peacefully at home in December, but his family is determined to carry on his legacy and help other children. So this week they launched a new foundation aimed at funding clinical trials to find a cure.

The rare and aggressive brain tumor that took Finn's life, diffuse intrinsic pontine glioma, or DIPG, has no cure.

Despite the painful treatment, Finn's parents say he always looked out for others, like his little sister Evie. But the fight was hard at times.

“I miss playing with everyone and talking to everyone,” Finn told News4 in May. “Everyone wants me to come back.”

It's only been a few months since Finn died.

“[We] “I still cry every day,” Greg Cusick, Finn’s father, told News4. “Finn wanted to fight, and he fought all the time.”

But through the pain they found meaning. The Cusick family has just created a new foundation in Finn's honor with the goal of funding research to find a cure for DIPG.

It's called When I'm Better Foundation.

“Because Finn always said that,” said Carrie Cusick, Finn’s mother. “'When I feel better, I'll play Minecraft,' 'When I feel better, I'll fight my sisters,' 'When I feel better, I'll play baseball,' that was it. Every single day.”

Finn wasn't the only one.

“When I talk to all these other parents, they say my kid said the same thing – when I get better, when I get better and we all knew they wouldn't get better,” Carrie said.

But the Cusicks hope to make these dreams a reality for future DIPG patients. The foundation will also donate money to families to cover the enormous treatment and travel costs.

“We have to find a way to help them and make it better,” Greg said. “You don't deserve this. They’ve already been through so much that they don’t deserve any additional pain.”